ACTION

Take ACTION in the campaigns we support by clicking on the petition images below to sign! You can also participate in FREE research with GENES FOR GOOD, as well as our private registry and ongoing research initiatives.  Be a part of the #HealthCareRevolution! Join the #TestDontGuess and #RightToKnow campaigns on Twitter and Facebook! bit.ly links are used for easier social media sharing. Sharing is caring!  Please CONTACT us with petitions involving: RARE & complex medical conditions, chronic illness, invisible illness, chronic pain, genomics, mental health, patient rights, HIPPA, Cancer, Medical Kidnapping, registries, research, and legislative action. THANK YOU!

imageSign the pledge to let elected officials know that federal funding is necessary for Be The Match® to continue its life-saving mission of delivering cures to patients with blood cancers and other deadly diseases.

CDC STOP LIMITING OPIOID PRESCRIPTIONS for CHRONIC PAIN PATIENTS

http://www.petition2congress.com/17206/petition-recognizing-gastroparesis-as-disability-by-ssa/wt/?src=widget

#HR2311


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CARE2 PETITION to Demand Awareness for Chiari

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PETITION to DEMAND SYRINGOMYELIA PROTOCOL

 

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PETITION to Increase Higher Education & Diagnosis of Invisible Illness to Prevent Suicide

 

 

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SUPPORT CHANGE IN DIRECT PATIENT CARE FOR SYRINGOMYELIA & CHIARI TO SAVE LIVES!

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free MIRACLEBAND CMNHospitals JLO

Show Your Support for CHILDREN’S MIRACLE NETWORK HOSPITALS #MiracleBand

 

Thanks to everyone who helped with the Bethanie Rowlands petition!

 

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